[][] Twins ... and Down Syndrome [][]

Twins ... and, Down Syndrome

written by PAPA

If there is a family blessed with the baby who wasn't only a little ordinary.
If there is a father, mother, family who is only a little in confusion.
Even if we are only a little, we want to do help on a feeling.

January, 2000. The babys of 'dizygotic' twins (those formed from two eggs) came to our house.
They got over an urgency miscarriage.
An SOS has been transmitted by the unstable heart sound.
They still lived desperately.
Then, twins came to meet us at last.
At that time, I met "my children" for the first time.
Two little babies stood in a line there.
They were the existence no exchange with anything.
Children didn't make what one me feel a worry at that time.
They were two quiet sleeping faces.

In next day after the birth, there was notice from the charge's doctor.
At first, I thought. "Whose thing is it? What's mean?"
I fell into the big confusion gradually and gradually.
My son born to this world with "Down Syndrome" and a congenital heart disease (Ventricular Septal Defect(VSD)), and it had had him it had in this world.

I haven't gone into the head though it looks over how many books though I think "You must do something." and buy a book and a homepage is looked for what, either.
I felt that "my mental condition" couldn't be adapted to the situation clearly.

Grandmother (my mother, nurse) examined hard instead of me who wasn't useful.
She made contact to the public health nurse of the area.
She collected much information.
She was introduced a related organ and introduced the group of parents who have same (Down Syndrome) children, too.
She participated in gathering of the group, and collected information.
Then, she had various people introduced.
So, my son had been helped many many people.
He get a wonderful environment with love.

I passed one year with confusion.
(I really felt dizzy, and I hospitalized.)
All arrangement isn't always settled in my heart.
But, (as for the human heart, it is functioning well),
"a guilty conscience", "fear to the prejudice" and "a worry to the future"
are softened gradually in my heart.

If there is a father and mother
who is blessed with the baby who is not "usually" just a little
and who is just a little in confusion.

If there are families or friends who are watching and feeling them impatiently,
Please help them for a while, until they regain themselves.

Even if there are some difficulties in the example body,
wonderful society contribution is done,
and the people who spend a life meaningfully are in Japan.

I respect these families of them.

I think that we have same feeling that want to carry out some for our children.

First, how about beginning from the ability of yourself to do?
How about giving up and depending on someone ?

I think that parents are the existence which should grope for a better method
for their children with a possibility of growth.
And then, I think that parents should accept further their children "is unvarnished", too.
(It seems that however, I cannot yet practice this.)

I think the judgment that what we must teach or not teach our children now
should be calmly passed with opinion of a specialist or an unrelated person.

I consider that it is better to avoid since judgment only by parents tended to incline.

Although the information on the down syndrome which I have still is not enough,
I open to the public as much as possible.

Please teach me your information. If you say "I know such a thing"!

I am very happy
if I can pass my heart with many more fathers, mothers and families
in litte confusion who blessed a baby "not only a little ordinary"
through this HomePage.

Thank you.

4 April,2001 Shin868